Do you have a disability-related question or issue, but you don’t know where to start? Try the following resources which can help you find specific assistance.
- Centers for Independent Living
- Protection and Advocacy Organizations (see section below)
- Parent Information Centers
Asserting Your Rights: Protection and Advocacy (P&A) Organizations
If you believe you are being discriminated against as a person with a disability or your vital needs are not being met, you may want to contact a Protection and Advocacy organization for legal assistance. These organizations can often provide advice or pro bono (free) legal counsel for issues like insurance/Medicaid appeals, discrimination lawsuits, and other situations. They are typically state-specific. See the links below to find the contact information for your P&A Agency.
- State Protection & Advocacy Systems (see the “Find your P&A Agency tab towards the bottom of the page)
- National Disability Rights Network
Personal Assistance Services
If you require assistance with Activities of Daily Living (tasks like cleaning, bathing, dressing, and more) to live in your home, you may benefit from personal assistance services. See the resources below for how to acquire them.
- How to Get Medicaid Personal Care Attendant Services If You Have a Disability
- How to Hire a Personal Care Assistant
- Medicaid Consumer-Directed Home Care Waivers State by State Guide
- Independent Living Research Utilization (ILRU) Resources on Personal Assistance Services
Vocational Rehabilitation (VR)
VR Agencies exist within state governments to help people with disabilities pursue education and employment. VR should begin working with disabled individuals during high school and aid in their transition to college and beyond by providing funding for tuition, assistive technology, Personal Care Assistants (PCAs), and more. See below to find your VR Agency.
- State Vocational Rehabilitation Agencies
- Vocational Rehabilitation Frequently Asked Questions (FAQs)
Preparing for Higher Education
When preparing to transition to higher education, the following resources may be helpful.
- Accessible College
- Contact your local Vocational Rehabilitation (VR) agency to get services like tuition funding, adaptive equipment, and more. See earlier section.
- Acquire personal assistance services to aid with activities like showering, dressing, and more. See earlier section.
- Talk with your high school about setting up a 504 Plan so your accommodations can transfer to college with you. This may mean transitioning an IEP to a 504 Plan, or starting it from scratch.
ADA/504 Complaints in Higher Education
If you’re facing access issues at your college or university, you should first contact your college’s office of disability services and attempt to resolve the issue with them. If that isn’t possible, you may want to do more research using the resources below, or seek legal representation through a Protection & Advocacy Organization (see earlier section) for your state.
- Contact your college’s office of disability services
- National Center for College Students with Disabilities
- Accessible College
See below for a short list of a few disability history resources.
Disability Arts and Culture
See below for a short list of several organizations, projects, or artists working in the disability arts and culture space.
- Disability Visibility Project
- Rooted In Rights Resources
- Power Not Pity Podcast
- Sins Invalid
- Filmmakers with Disabilities
- Disability Justice Culture Club
- Accessible Stall Podcast
Disability Advocacy Organizations
Below is a list of disability advocacy organizations. This list is far from complete, but may be a good place to start for people looking to get involved in disability advocacy.
- Humanity & Inclusion (HI)
- Disability Rights Education and Defense Fund
- Independent Living Research Utilization
- American Association of People with Disabilities
- Autistic Self Advocacy Network
- Communication First
- Ford Foundation
- Autistic Women and Non-Binary Network
- National ADAPT
- NAMD Advocates
- Disability Media Alliance Project (DMAP)
- National Council on Independent Living (NCIL)
- The Viscardi Center
- Starkloff Disability Institute
- The Consortium for Citizens with Disabilities
- United States Access Board
- National Association of the Deaf
- Disability Justice Collective
- Project Lets
- Health Justice Commons